Today I had the pleasure of appearing on WTNH’s Good Morning Connecticut, which is Ch. 8 here in the state. It was a great opportunity to raise awareness for Rare Disease Day, which is taking place this year on February 28th, and also to talk about my personal experience with a rare disease. I always enjoy opportunities like this to break out of my shell and reach new audiences. Many thanks to Quinnipiac and Ch. 8 for setting this up!

Some people have asked if I was nervous. Honestly, I didn’t find this to be any more nerve-racking than public speaking. The only time I got nervous, actually, was when I forgot the news anchor’s question halfway through answering it! I figured I’d just go into ramble mode and try to give as holistic an answer as possible – the last thing I wanted to do was be like “Uh….what did you ask again?” Rewatching the tape, I realized she only asked what it was like living with the condition, so no matter what I said, I would have been just fine. My memory isn’t the best when I haven’t had a full cup of coffee…

Below is a link to the video. If they put it on YouTube, I’ll update this post with the YT embed. Hope you enjoy it!

http://wtnh.com/2018/02/22/quinnipiac-university-to-hold-rare-disease-day-lecture-and-panel-discussion/