Pete’s Legacy

The notification that I had been dreading for five years popped up on my phone Monday afternoon.

Pete Frates, ALS advocate who helped turn the ALS Ice Bucket Challenge into a worldwide phenomenon, had passed away.

This news did not come as a surprise. But regardless of whether or not it was expected, the news pierced my soul. It hurt. I felt like I had lost a good friend, even though I never met him.

I had followed Pete’s story ever since I first learned about the ALS Ice Bucket Challenge in the summer of 2014. Even as his physical condition deteriorated over the years, his spirit remained defiant. His perseverance through hardship was the example I needed during an incredibly difficult time in my life.

Continue reading “Pete’s Legacy”

5 Years

Five years ago today, my coworker and good friend Carly Hughes passed away from cancer at age 24. The day is forever etched into my memory. Part of me still wants to believe that she got better, came back to work, and resumed her life. It still seems inconceivable, even after all this time, that she is actually gone.

Continue reading “5 Years”

My Role Models

Note: This post is a supplement to an article I wrote for the Muscular Dystrophy Association’s Quest magazine in January 2018, which you can find here.

I have also written about the importance of role models in this post

I have had many role models over the years who have helped me come to grips with my muscle disease. Some I have come to know personally; others I hope to meet one day. And of course, there are those I will never get the chance to meet.

The goal of this page is to list all the people who have helped me in some way. Each person, at some point in my life, helped pick me up when I was feeling down, and I am forever grateful.

Eventually, time-willing, I will write a blog post about each person to give them their due credit. As of right now, I will list them out, and provide a link to their story or website, so that you can learn more about them. If you are having a tough time, I highly encourage you to Google them or click on some of the links below. Contrary to how it seems sometimes, there are many extraordinary people out there in the world that we can learn from and emulate. Continue reading “My Role Models”