Now What?

I took my final steps on May 11th, when I fell in my bathroom at home and had to be helped up by paramedics. To continue trying to walk was just too risky. Two months have passed since that day, and I have had a lot of time to think about what losing the ability to walk means for my life going forward.

I see my legs every day. I can still move my toes, bend my knees, and flex the flabby remnants of my calf muscles. I can still feel the pain of tense muscles, the ache of sore hips. I still get random itches on my feet that never seem to go away. My legs are still very much a part of my life, and I am thankful I still have them.

But in the task they were designed for, to get me from point A to point B, they don’t work. They are accessories, not workhorses.

Continue reading “Now What?”

Final Steps

A couple weeks ago, I experienced a milestone in my disease progression that I knew was coming, but I still wasn’t quite prepared for: I stopped walking.

Technically speaking, I stopped taking steps forward. I can still shuffle around while holding onto my dad, but for all intents and purposes, I have taken my final steps.

Continue reading “Final Steps”